The nurses kept me comfortable and tried to alleviate my fears but half an hour passed before our questions were answered. My daughter had a severe heart defect. It could be corrected through surgery but not until she gained a little weight and strength. I understood in that moment that my life had changed forever.
I demanded to see her immediately, and as soon as I did, I fell in love. This most precious of all gifts was going to survive the obstacles ahead of her with my help. I knew in an instant that all my strength, love, and monetary resources were at her command. Nothing she wanted, needed, or even dreamed of, would ever be denied.
The heart surgery to correct a flawed valve was a resounding success. Fortunately, the common defects occurring in a majority of Downs syndrome children were absent in Paula. She has no intestinal malformations, hearing impairment, or severe visual problems.
We are truly blessed.
My parents adore this exceptional grandchild. Their expertise in teaching, nurturing, and parenting has been so welcome. I always knew they were there for me; now they are there for us.
I am aware of the sympathetic looks from strangers who dont know or understand the disorder afflicting my child. Their pity, for what they ascertain as my plight, is misplaced but understandable. I am sure that I, too, felt sorry for parents of what I thought of as imperfect children.
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