There is no cure for this disorder. Neither is there any prevention. My child would be developmentally and physically retarded to a greater or lesser degree. She could have numerous health problems. It was unlikely she would ever marry and her having children was out of the question. Her life expectancy could be as little as 55 years.
Paul and I had been married for ten years and had always regretted the fact that I had been unable to conceive. After he died, I attributed my nausea, vomiting and lethargy to my grief, never suspecting that I might be pregnant. Poor Paul would never know that we would have a child together. This thought alone was what made me realize that I wouldnt be able to have an abortion, no matter what obstacles might be ahead of us.
I waited a day before calling Dr. Sam to inform him of my decision. I had to be sure! Miriam, I think I know why you want to go through with this pregnancy, but are you aware of the risks? I know my baby will be different.
I know she may be mentally and physically retarded. She may have developmental difficulties and problems with social acceptance. I do recognize that I am going to have to amend almost every facet of my life. I am prepared to do that. This is my final gift from Paul and I am determined to go through with this!
I thought you would feel that way. You have my utmost admiration and support. I will follow your pregnancy carefully but I want you to see a specialist in birth defects. I will refer you to Dr. Brown and would like you to make an appointment with her as soon as possible, he said. I knew then that I had made the right choice.
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