Louisa’s mum,Lottie,told NBC News that the girl had flulike symptoms just over a year ago.Shortly afterward,she had her first period of long sleeping.
She was eventually diagnosed with KleineLevin Syndrome,whose victims worldwide may number no more than 1,000.The victims live normally for weeks or months at a time,with normal sleep patterns and normal energy levels.Then,with little warning,they’ll go to sleep for days or weeks at a time.So far,Louisa’s longest period in bed has been 13 days.Victims will wake briefly,but be disoriented and not fully awake.Louisa’s parents force her awake so she can use the bathroom and eat.
Now,Louisa’s friends can tell when a period is coming on.She stops talking and she may be annoyed easily.That’s when she knows she has to get home to her bed.Louisa has slept through family vacations,the dance recitals (表演会) she loves to perform in,and school tests.Now it becomes increasingly difficult to catch up on missed schoolwork.
But just as doctors don’t know the cause,they also don’t know why it ends as mysteriously as it began.The illness is unrelated to narcolepsy (嗜眠病),whose victims are constantly tired and drop off for brief periods of sleep at any time.
It’s so dramatic that some people have accused Louisa of making the false symptoms to get attention.Her father,Richard,thinks that’s absurd.
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