'Lily was uncharacteristically quiet and kept saying: "My head feels strange - I don't feel well." I just thought she was coming down with a cold.'
After the skating they went to a restaurant and Lily fell asleep through the whole meal.
Lily refused to get out of bed for the next 25 days, barely eating or drinking. She slept for 23 hours a day and couldn't bear noise or light.
A month later Lily was due to take some mock exams but suffered a further three-week episode before making a similar 'miraculous' recovery. A third two-week episode followed a few days after her 18th birthday and her parents had to cancel her party.
Doctors suggested conditions from migraine to ME and depression. A consultant neuropsychiatrist suggested Lily was suffering from 'recurrent depressive episodes'. She was prescribed anti-depressants and a course of cognitive behavioural therapy.
However, a fourth episode followed in July 2008. This time she was awake for a few hours each day but was afraid to be alone.
'She behaved like a four year old, cuddling her teddy, sucking her thumb and crying that she thought she was going to die,' Ms Clarke said.
Lily continued to have regular episodes and although she managed to go to university she was falling behind with her studies. Without an official diagnosis she could not be granted 'extenuating circumstances.'
Then in February 2010, Ms Clarke read an article in the Daily Mail about Louisa Ball, who suffered with the 'sleeping sickness' Kleine-Levin syndrome.
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