Even people in the witness protection program must take with them fundamental aspects of themselves which can never change. What are these aspects for me? This is what I learn every day, and so far I have discovered many unique things, but one stands out above the rest. I have discovered in myself an ability to recognize, give, and receive caring in a way far deeper than anything in my life previously. Others have seen this in me as well.
I, who have always been an intensely private and independent person, have allowed a wide circle of family and friends into the mostintimate(亲密的)parts of my life. Previously, I would have found such a prospect appalling. I might have felt I had no choice but to embrace the assumption that living with ALS means a life of hardship and isolation. Instead, because I believe that I always have a choice, I opened myself to other possibilities. And now the very thing that at first seemed so abhorrent has graced my life with unaccustomed sweetness. It was always there. Only now I have chosen to see it. This sweetness underscores and celebrates my belief that I always have a choice.
Catherine Royce was diagnosed with ALS when she was 55. She was a dancer for 30 years and a former deputy art commissioner for the city of Boston. Royce lives in Dorchester, Mass., where the family's dining room has been converted into her bedroom.
Independently produced for NPR's Morning Edition by Jay Allison and Dan Gediman with John Gregory and Viki Merrick. Production assistance from Richard Knox.
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