PADI3、TGM3 和TCHH这3种基因中任何1种产生突变，就会导致这种症状。尽管现在没有治愈的方法，但是随着年龄的增长，头发将会变得可控。

In order to show off her fine hair, Shilah and her family also created an Instagram account, so that others could also learn from how the condition changes with age.

为了展示茜拉漂亮的头发，茜拉和家人还开通了Instagram账号，这样其他人也能得知随着年龄的增长这种症状会发生什么变化。

The youngster has also tried her hand at modelling - something her family hope will show the positive side of embracing such a condition.

茜拉还尝试去做儿童模特，她的家人希望借此表现出她接纳这种发型的积极的一面。

Celeste said: "Shilah draws attention everywhere she goes and always has since her hair grew through at about three months old.

塞莱斯特说：“茜拉无论走到哪里都会引人注目，她大约3个月大开始长出头发后，就一直如此。

"Her older brother, Taelan, has been a fantastic support when other children make comments towards her or even touch her.

“当其他孩子们对她评头论足甚至用手摸她头发时，她的哥哥泰兰总会挺身而出。

"Having said that, adults can be just as juvenile and say some of the most random things or take photos of her and even touch her hair.

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