有家族史的儿童患病风险会增加,出生后应尽快定期检查。
这种基因异常也会增加发生第二种原发性肿瘤的风险,需要终生密切观察。
Too poor to afford the medical expenses, her mother raised money twice through a crowd-funding platform called Shuidichou in November and March, according to Red Star News.
据红星资讯报道,因家庭困难无力负担治疗费用,王凤雅的妈妈曾在去年11月和今年3月两次在众筹平台水滴筹募捐。
Hoping to raise more money, she also posted a video on Huoshan, a short video sharing platform in China.
同时,为了募集更多钱款,她还在视频分享平台火山发布视频。
However, after fundraising, some netizens doubted whether she had actually spent the money on her daughter and speculated that she had instead spent it on medical costs for her son who has a cleft palate.
然而,募捐之后,有网友质疑这位母亲是否真的将善款用于女儿的治疗,并怀疑筹集来的钱被她用于支付儿子唇腭裂治疗的费用。
5月27日,该起事件涉及的水滴筹平台(北京水滴互保科技有限公司)发布消息回应称,杨美芹总计在平台筹款35689元,非网传15万元,并表示未来将与医院建立合作,加强审核并跟进患者后续治疗的资金使用情况。
Shuidichou released a statement saying that it was working with the police to figure out if there was any misappropriation and how much money had been used for the girl’s treatment.
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