小查理患有罕见的退行性疾病,也就是线粒体DNA缺失综合征。英国的主治医生主张撤掉查理的呼吸机,并称查理没有呼吸机就无法存活,他有权体面地离开人世。而小查理的父母克里斯•加德和康妮•伊茨却希望医院把小查理送还他们,他们会带孩子到美国进行实验性治疗。
查理是世界上仅有的16个患有线粒体缺失综合征的患者之一,这种病症会引起渐进性的肌肉无力和大脑损伤。现在查理已经受到了不可逆转的脑损伤,不能自主呼吸,失去了视力和听力,无法移动、哭泣或者吞咽。目前医学上没有任何办法进行有效治疗。8个月来,查理一直在医院的重症监护室里接受治疗,在呼吸机的帮助下维持生命。
患儿生命应由谁做主?
查理一家的遭遇重新唤起了关于患儿生命应由谁做主的讨论。
The case has resurfaced a decades-old debate over euthanasia and the use of life support, issues that have been fought in most corners of the world and that have often seen medical and religious arguments collide.
数十年间,世界各地关于安乐死和呼吸机的争论声就一直没有停止过,还时常伴随着关于医疗和宗教问题的讨论。如今,这项争议再次引发关注。
There is some legal uncertainty, too: Under British law, parental responsibility includes the right to give consent for medical treatment, according to the British Medical Association. However, parental rights are not absolute, and in cases in which doctors and parents disagree, the courts may exercise objective judgment in a child's best interest.
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